Dear Dr. Hull: When we last communicated, my son was having COVID complications even though we were both fully vaccinated. He’s 21 years old.
I am not an anti-vaxxer. You and I may differ on our political beliefs, I do not know, but I can assure you that I think people should get the vaccine, if able to, though I am not sure about forcing people to get it. I am not quite sure about calling it a vaccination either. I think it’s more like a flu shot as opposed to a polio vaccine.
All of that being said, my son developed epilepsy this summer shortly after we spoke. It is coincidental that he was vaccinated just a few weeks before, and had never had a seizure before. If I had to do it over, I would still get vaccinated, but maybe not my son.
I think that since he already had neurological difficulties because of severe autism, the vaccination may have exacerbated things in his brain that brought on other complications. Many people believe that the vaccines given at an early age cause autism.
I don’t know about that, but if those vaccines given at an early age are trusted vaccines that we have no problem with, and if they claim the vaccines went through extensive research and authorizations, who is to say that this vaccination can cause neurological difficulties, as well?
I don’t have the answers, and probably never will, but I do think that I would put much more thought into it the next time.
Anyway, he’s now developed epilepsy and it scares the hell out of me. I have never seen this before, face to face, and he had never had anything like that before. I thought that I was watching my child die right before my eyes and there was nothing that I could do to stop it – just sit there and watch.
He has had several seizures besides two Grand Mals. I was a nervous wreck all summer, and basically I’m now a helicopter dad. The doctors and nurses said that I couldn’t keep doing that or my propellers would give out, and I would crash and burn. I agree, it’s hard since he is non-verbal and cannot tell me when a seizure is coming on, or how he feels afterwards, or anything at all.
The neurologist increased his medication since he has breakthrough seizures, and I hope that is the answer. Most people I talk to that have had seizures tell me that it may take a while to get the meds right, and that it just takes communication between the doctor and patient to get it right, and therein lies the rub.
His building at the school has been closed down twice because of COVID issues too, so that affects me because I have had to take time to go get him tested in a timely manner, and miss work.
I have raised my children alone since my son was 3 and my daughter was 6. They are now 21 and 24. It is seriously stressful and kind of embarrassing, as well. I am not a man that easily asks for help from others, although that should be easy and not a problem.
I still think that vaccinations have a much better efficacy and prevention at a much higher rate. I prefer to just call it a shot. The COVID shot. Much like I call the flu shot just a shot and not a vaccine. I call polio, measles, mumps, rubella, and various others vaccines.
I think that there’s an almost non-existent possibility of catching COVID once you’ve received the shot. Side-effects are still being found out as well. I guess my son’s epilepsy is a side-effect of the shot, but no one has confirmed this.
COVID mutates and forms new strains just like the flu, the possibility of eradication even if the entire population gets the shot is minimal at best, and the possibilities of becoming sick after the shot are supposed to be low, but definitely still a measurable chance.
Thanks for listening – I just needed to vent to someone who won’t judge me.
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